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Oak Room Wines & Cystic Fibrosis Victoria

 A moment of your time if I may

      Help Me Raise $5,000 for Cystic Fibrosis Victoria

A message from Oak Room Wines owner – Jason Robertson

Many would already know, but for those who don’t, my eldest Son Ned, suffers from Cystic Fibrosis or ‘CF’ for short.
Oak Room Wines is proud to be launching its first wine fundraiser for Cystic Fibrosis Victoria for a cause extremely close to my heart.

Fundraising is at the core of Oak Room Wines, with hundreds of charities, organisations and personal fundraising missions being supported. Now it’s time for me, the Owner and Chief Wine Man – Jason Robertson – to run my own wine fundraiser to help Ned and all those who suffer with CF.

Please continue reading to see how your support through buying delicious wine can help those suffering this cruel genetic disease still searching for a cure…$45 from every dozen bottles of wine we sell will go directly to Cystic Fibrosis Victoria.
Hurry – Orders Close 31 May 2016. Minimum order of 3 bottles of any one variety.

Orders of 12 or more bottles SAVE 10% at Checkout!

Cheers,
Jason Robertson
Chief Wine Man – Oak Room Wines



 

 How Can I Help?

 $45 from every 12x bottles sold Donated to CFV.

Ok, I have made this really easy! 10 different wines, personally selected, Cystic Fibrosis Victoria wine labels & all easy to buy online.

  • Red Wines – GSM & a Shiraz from McLaren Vale, Cabernet Sauvignon from Coonawarra, Tempranillo from SA and a Mornington Peninsula Pinot Noir…yummy
  • White Wines – Coonawarra Chardonnay, Adelaide Hills Pinot Grigio, Moscato and Pinot Chardonnay Brut. From NZ is our biggest selling Sauvignon Blanc, it’s bloody good!


 A Little About Ned – My  Hero

Ned is about to turn 10 years old this June, he is everything that typifies a glowing parents ‘perfect’ child. Smart, quick witted & great at sport  – except he has CF, something no child should have to endure.
Amazingly his awareness and understanding of this at such a young age never ceases to amaze me. He has to put up with a lot but takes it in his stride.

He loves basketball, his brother Lucas, his mum, family and friends. And assures us all he will make it to the NBA and buy me a Ferrari with his earnings. I’m holding him to that!

      Ned’s Typical Day…

Ned’s management and treatment of CF is lifelong, ongoing and relentless. He will consume up to 40 capsules daily to help digest food and may need to do several hours of airway clearance each day. Ned visits the Royal Children’s Hospital 4-6 times year so that his progress can be monitored,aiming to avoid long stays in hospital. Since Ned was born, he has spent around 4.5 months in hospital.

Ned’s treatment generally involves:

  • Intensive daily physiotherapy to clear the lungs
  • Enzyme replacement capsules with food to aid digestion
  • Antibiotic therapy to treat lung infections
  • Aerosol mist inhalations via a nebuliser to help open the airways
  • Salt and vitamin supplements
  • A nutritious, high calorie, high salt, high fat diet
  • Exercise – important to help clear the airways and build core strength.

All this before he even starts his normal daily activities like going to school.



 What Is Cystic Fibrosis?

      In a nutshell…

Cystic Fibrosis (CF) is a recessive genetic condition. The gene involved in CF gives instructions for the cells to make a protein that controls the movement of salt in and out of cells.

  • CF is the most common life threatening, recessive genetic condition affecting Australian children.
  • Symptoms can include poor weight gain, troublesome coughs, repeated chest infections, salty sweat and abnormal stools.
  • Cystic Fibrosis is a genetic disease that affects a number of organs in the body (especially the lungs and pancreas) by clogging them with thick, sticky mucus.
  • Repeated infections and blockages can cause irreversible lung damage and death. Mucus can also cause problems in the pancreas preventing the release of enzymes needed for the digestion of food. This means that people with CF can have problems with nutrition.
  • There is currently no cure for Cystic Fibrosis.

 About Cystic Fibrosis Victoria

      Where will the money raised go and how will it help…

Programs and Services – provision of support programs and services that help to enhance the quality of life and meet the needs of over 900 members.

  • Research – promotion and facilitation of research into improved treatments and therapies for people with cystic fibrosis, and fundraising to support the Australian Cystic Fibrosis Research Trust.
  • National Unity and Collaboration – participation in cooperative initiatives between the cystic fibrosis organisations across Australia.
  • Public Awareness and Communications – maintaining and improving relations and communication with members, the wider cystic fibrosis community, and other key stakeholders.
  • Information, Education and Advocacy – delivery of information and education services to key stakeholders, and representing individuals and groups on issues that require government or institutional action.



 

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